The Burden on Family Caregivers to the Patients with Alzheimer’s Disease and Other Dementias in Nicosia, Cyprus
P. Kallianezos
Department of Public Health, Medical School, University of Patras, Greece
P. Plotas
Department of Public Health, Medical School, University of Patras, Greece
A. Italou
Postgraduate Program Health Management, Frederick University, Nicosia, Cyprus
K. Petropoulos
Department of Mathematics, Unit Statistics, Probability Theory and Operational Research, University of Patras, Greece
P. Pappa
Department of Public Health, Medical School, University of Patras, Greece
G. Charalambous
Postgraduate Program Health Management, Frederick University, Nicosia, Cyprus and General Hospital of Athens “Hippocratio”, Athens, Greece
E. Jelastopulu *
Department of Public Health, Medical School, University of Patras, Greece and Postgraduate Program Health Management, Frederick University, Nicosia, Cyprus
*Author to whom correspondence should be addressed.
Abstract
Purpose: Dementia is a major problem in modern society of 21st century. The incidence and prevalence of dementia progressively increases with age. The impairment of cognitive functions in patients with dementia results in an increased burden for family caregivers. The objectives of this study were to investigate the burden on caregivers to patients afflicted with Alzheimer's disease and to estimate the factors affecting their quality of life.
Patients and Methods: The study involved 79 family caregivers of patients with dementia and was carried out from June to August 2014. The Greek version of ‘The Zarit Burden Interview’ was used, which included 22 questions/statements relating to the emotions of family caregivers. The questionnaire included 16 additional demographic and socio-economic questions. The statistical analysis was performed with SPSS 22 package.
Results: A total of 79 caregivers participated in the study, 65% were females and 69.6% were married. 74.7% stated that they were related to the patient. 81% felt a restriction in their personal life, and 58.2% felt stressed from the patient care. 81% expressed their fears for the patient's future. 65% responded that the patient was dependent on them. 65.8% felt burdened with the patient care, and 43% felt socially isolated. 49.4% had lost control of their personal life, while, 52.6% felt guilty about not caring enough. 47% of the caregivers to patients who have Alzheimer's disease stated that they have not attended any training program for home caring.
Conclusions: The study highlights the huge burden on caregivers. Therefore, it is imperative to diagnose these disorders in the early stages and thereby improving the quality of life for both patients and caregivers.
Keywords: Family caregivers, dementia, Alzheimer’s disease, burden on caregivers